World Federation of Hemophilia

In Lebanon, refugees and non-Lebanese people with inherited bleeding disorders (PWBDs) can’t access treatment products because they aren’t nationals. Staying true to its mission to support every patient within Lebanese borders who needs care, the Lebanese Association for Hemophilia (LAH)—the World Federation of Hemophilia (WFH) national member organization (NMO)—has been step...

Join us virtually on October 20 and 21, 2026, for the fifth edition of the WFH Global Policy and Access Summit (GPAS). This free, two-day global event is a unique opportunity to learn, discuss, and exchange knowledge on navigating the evolving treatment landscape and addressing existing gaps in access to care and treatment for people with bleeding disorders.

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For years, Tanvirul Haq’s childhood was shaped by pain, limited mobility, and the constant disruption caused by severe bleeding episodes. Diagnosed with hemophilia as an infant, the Bangladeshi youth struggled to participate in everyday activities that many healthy children take for granted. Today, thanks to access to non-factor replacement therapy provided by the World Feder...

National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Every few weeks we will be profiling an NMO on the WFH News page, s...

For Marlène Beijlevelt, a Nurse Practitioner specializing in bleeding disorder care in the Amsterdam University Medical Center, Amsterdam, Netherlands, shared decision-making is much more than just a conversation between a patient and a healthcare professional. It’s a continuous journey that empowers patients and families to explore their choices, identify their priorities, a...