Ashleigh Harley was just 21 when, following a devastating ten-year delay in diagnosing her Ehlers-Danlos Syndrome (EDS), she became critically ill and was given just six months to live. Now, against the odds, Ashleigh is alive and has turned the experience into a national campaign calling for earlier diagnosis and better support for young people living with complex, chronic [...
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Website title: The Irish World | THE community newspaper for the Irish in Britain