The Hypermobility Syndromes Association

Ever been told you’re “just bendy” or “you should do gymnastics” if so, you’re in familiar territory. For a lot of us, hypermobility starts as a quirky party trick we don't think about very much and ends up being… a whole constellation of experiences nobody warned us about. And that’s exactly what our newly updated “Hypermobility: What’s the connection?” poster is getting at. It...

You're not losing it, this session was originally scheduled for the 17th and postponed due to pacing requirements. And yes, the first minutes were missed (but included in the summary below). Presenter: Jo Southall, Independent Occupational Therapist Host: Hypermobility Syndromes Association (HMSA) Session Type: Live Q&A (Ask the OT) Replay: video available here Key Themes Co...

The Ehlers-Danlos Support UK, Hypermobility Syndromes Association and The Marfan Trust are concerned by the decision of University College London Hospitals NHS Foundation Trust (UCLH) to temporarily close its hypermobility service to all new referrals.

Recent media coverage targeting chronic illness communities has been hard to sit with. It would seem that for some people, the idea that a life with chronic illness could include any joy, whimsy, economic value, or existence outside the home is... deeply uncomfortable. Our community are fully rounded, active members of society. The vast majority are working, volunteering, and ca...