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The Brain Tumour Charity

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The Brain Tumour Charity title: The Brain Tumour Charity

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A diagnosis that changed everything

When your child is diagnosed with an inoperable brain tumour, your world changes in an instant.

Our daughter, Felicity, was 12 when we found out she had a low-grade brain tumour deep within her thalamus. Because of its location, surgery was not an option. Like many families in this situation, we suddenly foun...


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I’m Hannah Lemanski and I’m a brain tumour patient. I was lucky enough to work with The Brain Tumour Charity as a patient voice throughout the phases of researching and publishing their report


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Day One The distress of delayed diagnosis

Our survey results show that the brain tumour community experiences great psychological distress and anxiety waiting for test results to confirm their brain tumour diagnosis.

We shared these results on the first day of the


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Professor Susan Short has today announced that ACT-BT has officially opened, in a talk at the British Neuro-Oncology Society conference.

Healthcare professionals can now refer people diagnosed with a brain tumour to its panel of experts to receive timely, personalised advice on clinical trials they may be eligible for. It’s for people over the age of 16 with any ty...


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Persistent drooling and a delayed diagnosis

Brian Whiting’s family spent several weeks thinking their cherished father’s persistent drooling was caused by problems with his teeth, only to discover he had a brain tumour.  

In January last year, the former electrician had just celebrated his 83rd birthday and had ...


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