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Sickle Cell Society

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Website title: Sickle Cell Society - Supporting People Affected by Sickle Cell Disorder

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Sickle cell community shapes the future of research

We’re proud to announce that the top ten priorities for future research into sickle cell and genomics have now been agreed — marking a milestone moment for people living with sickle cell and those who care for them.

We worked in partnership to deliver this result – the first of its kind to explore research priorities for sickle cell through the lens of genomics — the s...

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New Medical Trial for a sickle cell treatment

A new medical trial will soon be taking place in the North of England and there is a small amount of time left to take part if you are interested. More information is in the poster, along with a QR code, or use this link : https://www.fortreaclinicaltria...

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RHO Transition project – Blog 5 Online transition workshops

RHO Blog 5 – September 99

Online transition workshops 

This month we held our third online transition workshop, on the subject of future planning and educational support. T...

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RHO Transition project – Blog 4 workshops and events

RHO Blog 4: August

We held a second co-production event on Tuesday 26th August, in the model of our first. Young people aged 12-17, post-transition patients aged 18-24, and parents participated in focus groups around their current worries and concerns, and strategies to improve transition support and resources.

Young patients discussed feelings ...

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RHO Transition project – Blog 3 workshops and events

RHO Blog 3 – July  

On Saturday 19th July, we held our first face-to-face event for patients and families. This ‘co-production day’ welcomed North-East London patients aged 12-24 (pre- and post- transition) patients and parents. Through focu...

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