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Rarepatientvoice: Providing patients and caregivers a voice - Rare Patient Voice

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For the second year in a row, Rare Patient Voice President and Founder Wes Michael has been honored with an Insight250 award, sponsored by the insights industry association ESOMAR.

The post RPV President Wes Michael is an Insight250 Hon...


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In 2025, RPV surveyed 2156 patients in the United States for their thoughts on participating in co-design for clinical trials. On Sept. 16, noted industry media outlet PharmaVoice referenced the ... READ MORE

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Dave Roberts, MSW lost his 18-year-old daughter Jeannine due to a rare form of cancer, alveolar rhabdomyosarcoma, and was later inspired to create The Teaching Journeys Podcast. In this thought-provoking ... READ MORE...


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