Rare Diseases Clinical Research Network

"An Opportunity to Be Part of a Rare Disease Community": Dr. Michael Jeng on the 2026 K-T Support Group Conference Dakota Campbell Wed, 11/04/2026 - 12:04 November 2, 2026

By ...

"I Finally Had a Genetic Answer": Sinéad Zalitach on Receiving Genetic Testing Results Dakota Campbell Wed, 11/04/2026 - 11:51 November 4, 2026

By Sinéad Zalitach

In May 2026, I attended the International...

RDCRN Publishes First-Ever Annual Report Dakota Campbell Mon, 11/02/2026 - 09:59 November 2, 2026

The Rare Diseases Clinical Research Network (RDCRN), a national network of research groups collaborating to advance discoveries in rare disea...

NIH Expands Rare Diseases Clinical Research Network with New Research Groups Dakota Campbell Tue, 10/20/2026 - 16:03 October 19, 2026

The Rare Diseases Clinical Research Network (RDCRN) is welcoming eight new research groups to the network...

Establishing the First-Ever Spastic Paraplegia Research Consortium Dakota Campbell Fri, 10/16/2026 - 10:29 October 16, 2026

In 2025, the National Institutes of Health (NIH) awarded an $8.4 million grant to fund the...