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Site title: Rare Disease Day 2026
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On 28 February 2026, Rare Disease Day will once again bring together millions of people worldwide to spotlight the realities faced by those living with rare diseases and to call for more equitable healthcare, research and social inclusion.
There are more than 6,000 identif...
Living with a rare disease means navigating stigma, isolation, and uncertainty. For young people, these challenges are compounded by the pressures of growing up, starting university, entering the workforce, and building relationships, alongside shaping an independent identity.
Around 70% of genetic rare diseases present in childhood. This means young people are ...
Every year on Rare Disease Day, landmarks around the world are illuminated in rare disease colours. Since the first edition in 2008, the Light Up for Rare initiative has become a powerful visual symbol of solidarity with the 300 million people living with a rare disease.
But behind every illuminated building lies a foundation of conversations, persistence, a...