Receive updates from Rare Disease Day 2026 for free, starting right now.
We can deliver them by email, via your phone or you can read them from a personalised news page on follow.it.
This way you won't miss any new article from Rare Disease Day 2026. Unsubscribe at any time.
Site title: Rare Disease Day 2026
Is this your feed? Claim it!
Living with a rare disease means navigating stigma, isolation, and uncertainty. For young people, these challenges are compounded by the pressures of growing up, starting university, entering the workforce, and building relationships, alongside shaping an independent identity.
Around 70% of genetic rare diseases present in childhood. This means young people are ...
Every year on Rare Disease Day, landmarks around the world are illuminated in rare disease colours. Since the first edition in 2008, the Light Up for Rare initiative has become a powerful visual symbol of solidarity with the 300 million people living with a rare disease.
But behind every illuminated building lies a foundation of conversations, persistence, a...