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Parent Project Muscular Dystrophy: Parent Project Muscular Dystrophy (PPMD) | Fighting to End Duchenne
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While February may be known for Valentine’s Day candy and flowers, it is also American Heart Month!
Within the dystrophinopathy community, keeping heart health front and center is especially critical. It is estimated that around 67% of mothers of children with Duchenne muscular dystrophy and nearly 90% of mothers of children with Becker muscular ...
PPMD is proud to partner with the Muscular Dystrophy Association (MDA), the FSHD Society, and the LGMD2L Foundation on a new, collaborative research grant focused on one of the most fund...
Sarepta Therapeutics, Inc. has announced positive topline three-year functional results from Part 1-treated patients in EMBARK, the company’s global, randomized placebo-controlled Phase ...
Solid Biosciences, Inc., has shared updates on the company’s gene therapy program for the treatment of Duchenne. According to Solid, 33 participants have now been dosed in the ongoing Phase 1/2 INSPIRE...
PPMD celebrated a powerful and inspiring Walt Disney World® Marathon Weekend as part of its Race to End Duchenne endurance fundraising program this past weekend! PPMD runners, families, and supporters came together in Orlando, Florida, to raise more than $300,000 to accelerate rese...