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Title: National Organization for Rare Disorders | NORD
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NORWELL, Mass., Sept. 15, 2026 — The National Organization for Rare Disorders (NORD®) and the Rosenau Family Research Foundation today launched
On September 8, The U.S. Department of Health and Human Services announced the selection of four new senior leaders at the U.S. Food and Drug Administration (FDA):
Jared Seehafer, M.S., has been selected to serve as FDA’s first Deputy Commissioner for Technology and Artificial Intelligence Michael Davis, M.D., Ph.D., has been selected as...The National Organization for Rare Disorders (NORD®) mourns the passing of former U.S. Senator Nancy Kassebaum Baker, whose leadership helped change the course of history for people living with rare diseases.
More than four decades ago, when people with rare diseases had few treatment options and little infl...