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Title: National Organization for Rare Disorders | NORD
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New Initiative Will Bring Together NORD® Rare Disease Centers of Excellence to Address Challenges in Two Rare Autoimmune Diseases and Develop Approaches that Could Benefit Other Rare Disease Communities
WASHINGTON, D.C., October 27, 2026 — The National Organization for Rare Disorders (NORD®) today announced a major collaboration with Amgen to ...
Two New Patient Registries to Be Implemented on NORD’s IAMRARE® Platform with support from the Critical Path Institute.
NORWELL, Mass., Oct. 21, 2026 — The National Organization for Rare Disorders (NORD®) announces a request for applications for the implementation of two new patient registries on its NORD® IAMRARE® platform. Funding is made av...
Statement from Pam Gavin, President and Chief Executive Officer
NORWELL, Mass., October 14, 2026 — The National Organization for Rare Disorders (NORD®) applauds the U.S. Food and Drug Administration (FDA) for launching an initiative to develop a new regulatory framework tailored to the scientific and practical challenges of rare disease drug ...