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Title: National Organization for Rare Disorders | NORD
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WASHINGTON, D.C., Feb. 9, 2026 — Access to care for Americans living with rare diseases still depends heavily on where they live, according to the National Organization for Rare Disorders (NORD®...
Leaders across research, clinical care, industry, and patient advocacy convene to accelerate rare disease breakthroughs from discovery to real-world patient impact
Norwell, Ma., Feb. 5, 2026 — The National Organization for Rare Disorders (NORD®) today announced the agenda for its second annu...
A recent genomic analysis published in PLOS Genetics illustrates how large, diverse population cohorts can generate rare disease insights that are often difficult to obtain ...
BOSTON AND WASHINGTON, D.C., January 6, 2026 – Medlive and the National Organization for Rare Disorders® are proud to announce that NORD has again se...
The Senate’s failure to advance the Give Kids a Chance Act through unanimous consent is deeply disappointing.
For more than a year, thousands of rare disease advocates have engaged lawmakers across both parties to urge passage of the Give Kids a Chance Act, which includes reauthorization of the Rare Pediatric Disease Priority Review Voucher Program and passage of oth...