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National Organization for Rare Disorders

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Title: National Organization for Rare Disorders | NORD

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WASHINGTON, D.C. — March 24, 2026 — The National Organization for Rare Disorders (NORD®) today announced the appointments of Michael J. Beard as Vice President of Federal and Global Public Policy and Cara Tenenbaum, JD, MBA, as Director of Regulatory Affairs, further strengthening the organization’s leadershi...


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NORWELL, Mass., and MIAMI, Fla. (March 12, 2026) – The National Organization for Rare Disorders (NORD®) and OpenEvidence today announced a new partnership to expand access to trusted, expert-reviewed rare disease information for clinicians, patients and families.

Together, NORD and OpenEvidence...


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