National Ataxia Foundation

Enhancing Community Through Professional Support

For decades,

Guest Author: Pinalben “Pinky” Patel

My vision has never been 20/20. Okay, maybe it was up until my preteen years. This disease I have affects the eye muscles and nerves as ...

When I had my tinnitus investigated in 2007, a balance disorder was discovered. I was put in touch with a neurologist who suspected something called Ataxia. I have had poor balance my whole life and have had difficulty with certain games and sports. Music and art were my salvation. I learned to play the guitar and became really go...

Finding Balance: My Journey to a Rare Diagnosis

For years, I brushed off the dizziness, fatigue, and the way my feet sometimes seemed to have minds of their own. I’d trip over nothing, bump into door frames, and occasionally lose my balance mid-step. Friends would laugh and c...

My name is Jorge Alonso, I am 33 years old I was diagnosed with ataxia at 31 or 30, although I really felt the disease since I was 15 years old, before I played soccer, suddenly I fell I began to feel limitations when I ran so I stopped playing, as there was something that stopped the disease, at 22 I finished university as an eng...