National Ataxia Foundation

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Shaun Wesley Best1 week

My Ataxia journey began in 1978, following a three-month coma I experienced the year before, at age 12. Since then, I’ve faced significant balance challenges and experienced over 50 falls. It took many years before I was correctly diagnosed and prescribed medication to help manage my symptoms. Despite living with a number of diagn...

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Emilia Ordak2 weeks

Statistically, it’s much easier to develop ataxia than to win the lottery – even in its rare genetic forms – yet it remains little known. – “…do not worry, it’s so rare” – RARE does not mean it will not happen. Ataxia is rare, but it still entered my family. A “de novo mutation” is rare as well – and that also happened in my famil...

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J.C. Myers2 weeks

Ataxia comes as a dominant gene through my great grandfather, Ernest, my grandmother, Ernestine, and my mother, Leslie. My mother’s brother died young and we don’t know if he had it. I am the only one of four siblings who has it. My younger brother has early Alzheimer’s at 62.

...

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Face of Ataxia Research: Shane Hellyer, PhD3 weeks

Written by Victoria Martinez

Faces of Ataxia Research highlights scientists whose work is supported by grants from NAF. Each story shows how our donors are fueling discoveries that bring us closer to e...

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Susan Harding3 weeks

I’ve been living with a genetically acquired Ataxia since birth but was only clinically diagnosed in 1992. My mother was diagnosed in 1976. Her brother had been previously diagnosed in 1974. Another brother was never diagnosed but certainly had it.

In my late 30’s when I was having more trouble with balance and fatigue I wen...

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