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Muscular Dystrophy Association

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Message History

Washington, D.C, Tuesday, June 23, 2026 – The Department of Justice Office of Legal Counsel released a memorandum undermining the integration mandate required by Section 504 of the Rehabilitation Act and Title II of the Americans with Disabilities Act, as a...


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Washington, D.C., Thursday, June 18, 2026 – Today, the Muscular Dystrophy Association (MDA) celebrates the reintroduction of the


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Lake Charles, Louisiana, Wednesday, June 17, 2026 – The CITGO Lake Charles Refinery hosted its 41st annual CITGO MDA Golf Classic, raising a record-breaking $756,800 to support the Muscular Dystrophy Association (MDA). Funds from this event go towards MDA’s mission to support people living with neuromuscular disease through research, resources, education, mu...


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Meet Our Presenter:
Steven Cannon, MD, PhD, is a leading expert in skeletal muscle channelopathies, including periodic paralysis. He is a professor at UCLA with decades of research focused on the genetic and physiological mechanisms underlying muscle excitability disorders. Dr. Cannon has contributed extensively to advancing understanding and treatment of...


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Disease Area: Spinal muscular atrophy (SMA)Phase: Natural History StudyURL: https://mdaquest.org/clinical-research-alert-natural-history-study-in-individuals-with-myotonic-dystrophy-type-2/Agent: Natural History StudySponsor: University of Rochester

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