Please turn JavaScript on
MND Association - Fighting motor neurone disease icon

MND Association - Fighting motor neurone disease

Is this your feed? Claim it!

Publisher:  Unclaimed!
Message frequency:  0.17 / day

Message History

MND community heads to the start line for London Marathon Clare Brennan Fri, 24/04/2026 - 14:22

MONTHS of preparation will finally come to an end this weekend when 246 MND Association runners make their way to the start line for the TCS London Marathon 2026.

As one of the most iconic marathons in the world, the London Marathon is one of the biggest events i...


Read full story
Turnaround times fall for genetic testing results Tom Hitchenor Wed, 22/04/2026 - 11:46

Average wait times for genetic testing for people with motor neurone disease (MND) have dropped from 18 months to around three months, research by the MND Association reveals.  

The decrease follows more than a year of engagement by Ass...


Read full story
MND Views
MND Views Simon Hoggarth Mon, 20/04/2026 - 14:36 Resource description Watch video clips of people sharing their experiences of living with motor neurone disease (MND). Explore by topic or person to learn about care, support and daily life, with transcripts available. Resource Type

Read full story
Tofersen latest Tom Hitchenor Fri, 17/04/2026 - 10:57 Image

The National Institute for Health and Care Excellence (NICE) has started its appraisal of life-changing drug tofersen – a key step towards making it available on the NHS - with the MND Association working to ensure a positive outcome. 

Tofersen, developed by Biogen, has been ...


Read full story
Linda
Linda Domonique Dickens Tue, 14/04/2026 - 08:29 Meet Linda...

Linda, diagnosed with MND after 10 years of symptoms, shares her life before the diagnosis, highlighting her extensive career and achievements. Despite her diagnosis, Linda continues to fundraise and engage in activities like pottery which she finds therapeutic. Linda emphasises the importance of suppor...


Read full story