Living with Dementia

Meeting the Challenge of decline Living with young-onset Alzheimer’s disease has meant becoming an expert in a landscape that refuses to stay still. For a long time, I’ve mapped out my routines, found my workarounds, and established a feeling of control over my daily life. I tell myself that I know what to expect. But the reality of a progressive condition is that it is always m...

Building Global Services Introduction When you get a diagnosis like this before you are sixty-five, you quickly learn that the systems built to support you are often fragmented, outdated, and desperately lacking in consistency. But as I look beyond my own backyard, I see that this is not just a British problem; it is a global crisis of equity and voice. What infuriates me most i...

When you're living with dementia, life can sometimes feel like trying to solve a jigsaw puzzle where the pieces keep moving. On good days, the picture is clear. On other days, it takes a bit more effort to fit things together. But the one puzzle we really shouldn't have to fight with is the system that is supposed to support us. As a member of the Northamptonshire Dementia Actio...

We need an accreditation scheme NOW! Introduction Accreditation is a word that sounds like it belongs in a corporate boardroom, but for those of us living with dementia, it actually means something incredibly personal. It is about trust, safety, and being treated like a human being. When an organisation, a care provider, or a community project is officially accredited, it means ...