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Ian's Myeloma Blog, and more...

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Things went wrong - or at least unexpectedly - in my chemo session yesterday. For a start I had an hour's wait after the appointment time before a nurse called me in. Then I decided it was time to tell about a chesty cough I've had for three or weeks now and which isn't going away on its own. I nearly talked about it the week before but as there are no indicators of infection...

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Nothing much to report again. Chemo continues as usual on the same three-week cycle. Dex is now down to 20mg per week and - as happened during first line - the sleeplessness effect is not as strong as it was. So haven't been up until 4am or so for a while now.

The abscess is just about fully healed now, no longer a pain on sitting and I'...

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20/09/2025 Six!

Should have posted this yesterday, because the 19th was the sixth anniversary of my formal myeloma diagnosis "multiple myeloma type IgG kappa" and "a new aggressive myeloma". I've not done too badly so far, and rather better than that consultant predicted!


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Started Cycle 7 of chemo last Wednesday as normal, which is something of a relief after two weeks missed because of the bursa / cyst / abscess / whatever it was. Still tender after the minor surgery, but not in a bad way. Going down to Dorset tomorrow for my sister's birthday and not exactly looking forward to three hours in the car - will need lots of service station breaks ...

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Last (Tuesday) night was my first without any discharge at all so it was a little disappointing to get a phone call from Chemo this morning cancelling today's chemo session as the docs had had a conference and decided still too much chance of infection complications. 

Sent to my GP for "review" and another week of antibiotics, which...

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