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Not sure what an IEP or 504 plan is or if your child needs one? Today on Hydro Heroes Unite education law attorney Ashley VanCleef joins me to break down IEP’s and 504 plans for adolescents living with hydrocephalus. We talk about what the plans are, how to start the process, and what to be mindful of along the way. Ash...
The Hydrocephalus Association (HA) proudly represented the patient community at the 2026 Hydrocephalus World Congress in São Paulo, Brazil. Held July 31-August 3, this international meeting brought together researchers, clinicians, engineers, and industry reps from ar...
The future of hydrocephalus research depends on talented scientists and clinicians choosing to dedicate their careers to understanding the condition, improving treatment, and ultimately finding a cure. The Hydrocephalus Association’s Next Generation Scientists Travel Award helps make that future possible.
Formerly known as the Young Investiga...
Today we’ll be sharing parts of my conversation with Camille, a 15-year-old high schooler who loves musical theater, singing and writing and was diagnosed with hydrocephalus when she was ten years old. Camille is our first brave adolescent voice this season speaking out in her own words about her experience living with h...
Pediatric psychologist Dr. Elizabeth McRae returns to the show after her Season 1 conversation on caregiver resilience and advocacy. Today we’ll be sharing parts of our conversation about mental health in adolescents living with hydrocephalus. We explore how anxiety, depression, school stress, and chronic symptoms shape ...