Hydrocephalus Association

What Causes Thinning Scalp After Hydrocephalus Surgery?

Living with hydrocephalus often involves multiple procedures over time, especially for individuals with shunt systems

Why Headaches Happen at Night or After Waking Up

Headaches that occur at night or first thing in the morning can feel unsettling. For people living with hydrocephalus, these patterns may raise questions about pressure changes,

Background

Are you raising a child with hydrocephalus? We want to learn from your experience!

Caregivers understand the day-to-day realities of living with hydrocephalus. Your insights can help occupational therapists design more family-
centered services and supports. Findings may guide future education, advocacy, and resources for famil...

This fall, your voices made a real difference. Together we helped stop a harmful federal rule and raised strong concerns about a change to how the National Institutes of Health (NIH) reviews research. Here is the latest Scoop on Capitol Hill and how you can help.

You Helped Us Stop A Dangerous New Rule

The Hydrocephalus Association and the broader res...

By the Hydrocephalus Association

The Hydrocephalus Association (HA) is pleased to announce the 2026 Hydrocephalus Association Scholarship Award Recipients. We extend our gratitude to everyone who applied for a scholarship and congratulate those selected this yea...