Hydrocephalus Association

Background

All parents want their children to be happy and healthy. When a child faces medical challenges with no clear cause, it is understandable to feel frustrated and anxious. At the Pediatric Genomics Discove...

Background

The Hydrocephalus Association invites you to participate in an IRB-approved study currently being conducted by Bermans Iskandar, MD at University of Wisconsin focused on understanding chronic headaches in individuals with hydrocephalus treated with a shunt(s).

Why are researchers doing this study?

It is observ...

Help Advance Hydrocephalus Research — From the Comfort of Your Home

Researchers at Kennedy Krieger Institute and Johns Hopkins School of Medicine are inviting adults with hydrocephalus to participate in an important virtual research study focused on improving how thinking skills are assessed through telehealth.

If you or someone you know may be...

Managing Stress When Life Feels Overwhelming

Stress is a universal experience, and during overwhelming days, it can make even simple tasks feel harder to manage. Racing thoughts, mental exhaustion, difficulty focusing, and physical tension can quickly take a toll on your emo...

CONGRESSIONAL UPDATES Congress Tackles Affordability But Much Work Remains

Congress has made health care affordability a major theme in 2026, holding hearings on insurance premiums, provider pricing, and prescription drug costs. In January, House committees questioned top health insurance executives about rising premiums, deductibles, and out-of-pocket costs, lau...