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Title: Health Updates - Oliver
Ollie is all checked in at UNC and ready for his first night. We will start a primer chemo tonight and will continue it for the next four days. He should be pretty bored and won’t feel the negative side effects until we start more of the “hard hitting” chemo next week.
Thank you all for your prayers and Sutro connections. They have signed an agreement but early estimat...
Just an update to say that we spoke to someone from Blood Cancer United this morning and received some encouraging news that the drug (Luveltamab) may be legally transferred to Blood Cancer United as early as tomorrow where they would be able to give it to families through compassionate use. They need to re-label the drug, but while the original estimate was six weeks, there’...
There is a special drug that is not being produced anymore that was effective for many kids with Oliver’s type of leukemia. We would like to try it and the company is planning to donate the rest for compassionate use but hasn’t done so yet. If anyone knows anyone that works for Sutro BioPharma in South San Francisco, could you please email me at [email protected]? ...
We have walked so closely with grief over this past year. The ups and downs have been like a rollercoaster, catapulting us from extreme joy to overwhelming sadness and fear. First came the diagnosis of our precious one-year-old with cancer, and then his relapse a year after the diagnosis.
We had so much hope in this clinical trial. At least there was something to do, s...
Oliver is in his bone marrow biopsy right now. We should find out results at the end of the week as to whether or not he is in remission. He needs to be in remission to continue to transplant, but everything is set and approved for transplant to start on May 18.
All we can do now is wait and pray that this has worked. Will you pray with us that the T cells would be eff...