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EURORDIS-Rare Diseases Europe

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The below Member Comment article was shared with EURORDIS-Rare Diseases Europe by our member organisation, the SMA Finland ry.

As someone living with spinal muscular atrophy (SMA) and working closely with the SMA community at both national and European level, I have seen how ...


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The EURORDIS Annual General Assembly provides the vital opportunity for members to elect candidates to the Board of Directors, review and approve the Activity and Financial reports for the preceding year, and endorse the subsequent year’s Work Programme.

 Date: 19 May 2026
Location: Online
Time


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