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International Course on Monochorionic Twins2 days

The post International Course on Monochorionic Twins appeared first on EURORDIS-Rare Diseases Europe.

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State of the EU Biotech Act: How it can still be improved2 days

“A fight for industrial capacities is shaping global competition,” European Commission President Ursula von der Leyen told the European Parliament yesterday morning in her annual State of the European Union address.

Pharmaceutical research and development is one of the clearest opportunities within that wider industrial agenda. Health biot...

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SMA Europe clinical care symposium3 days

The post SMA Europe clinical care symposium appeared first on EURORDIS-Rare Diseases Europe.

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Rare Disease Day 2027 Launch Webinar3 days

Get ready for the countdown to Rare Disease Day 2027 with our Launch Webinars!

We are excited to introduce our 2027 heroes and unveil our new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities in your country or community. We are hosting two identical sessions on

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