Please turn JavaScript on
Find more feeds
EURORDIS-Rare Diseases Europe icon

EURORDIS-Rare Diseases Europe

follow.it gives you an easy way to subscribe to EURORDIS-Rare Diseases Europe's news feed! Click on Follow below and we deliver the updates you want via email, phone or you can read them here on the website on your own news page.

You can also unsubscribe anytime painlessly. You can even combine feeds from EURORDIS-Rare Diseases Europe with other site's feeds!

Title: Home - EURORDIS-Rare Diseases Europe

Is this your feed? Claim it!

Publisher:  Unclaimed!
Message frequency:  0.34 / day

Message History

7ᵉ Congrès de l’Alliance Maladies Rares

The post 7ᵉ Congrès de l’Alliance Maladies Rares appeared first on EURORDIS-Rare Diseases Europe.


Read full story
EHDN Clinical Research Congress 2026

The post EHDN Clinical Research Congress 2026 appeared first on EURORDIS-Rare Diseases Europe.


Read full story
European Congress on Inclusive Mobility

The post European Congress on Inclusive Mobility appeared first on EURORDIS-Rare Diseases Europe.


Read full story
Joint call in Parliament to accelerate an EU-wide Rare Disease Action Plan

Today’s event, “Rare Diseases: Placing Patients at the Centre of a European Framework”, marked a key step towards an EU Action Plan for Rare Diseases. The event, hosted at the European Parliament, and co-organised by MEP Nicolás González Casares and EURORDIS-Rare Diseases Europe, brought together the rare disease community and key policymakers committed to concretisin...


Read full story
The realities of living with an ultra-rare condition: A life-altering journey

This testimony by Aasam explores life with Molybdenum Cofactor Deficiency (MoCD) through a dual perspective: a daughter living with the condition, and a...


Read full story