EURORDIS-Rare Diseases Europe

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EURORDIS Rare Barometer reveals mental health crisis in rare disease community6 days

18 June 2026, Paris – EURORDIS-Rare Diseases Europe has released findings from its latest Rare Barometer survey showing that seven in ten (68%) people ...

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Practical solutions for real challenges: our ECRD 2026 Poster Pitch winners1 week

Just two weeks ago, at our 13th European Conference on Rare Diseases and Orphan Products (ECRD 2026), hundreds of posters were displayed in person and online. Together, they offered more than a showcase of research projects: t...

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Joint Action on Integration of ERNs into national health systems: preparing for implementation1 week

We are pleased to invite you to a special webinar with Prof. Birutė Tumienė, JARDIN Lead for WP4 (Sustainability) and co-lead for WP6 (Care pathways), who will present and share the core recommendations emerging from the Joint Action JARDIN...

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