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Crohn's Disease Forum

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Title of Crohn's Disease Forum: "Crohn's Disease Forum"

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Message History

Tremfya
I've been on stelara for around 8 years. It seems that it's losing effectiveness and my doctor wants me to start Tremfya. I've been on every 4 weeks. When I had the flare I had to prolong the dosing due to the flu. However, even on ever 4 weeks for 2-3 months I am still not able to come off steroids. Is it worth waiting for stelara to start working again or should I switch to Tr...

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Tracking wellness
I was wondering if anyone has found a good tracker tool to capture your symptoms? I know I should do this but I also dont want to give any more time to illness than it already takes.

Any suggestions please? Im thinking food, activity, cramps, pain scale, medication, energy level, output etc. Is there anything else Ive forgotten?

Thank you

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Normocytic Anemia
I have Crohn's Disease and a total colectomy with an ileostomy. I don't know if you would call this an extra intestinal manifestation, but I was recently at the er for severe pain and trouble catching my breath. I was very low on magnesium, and very dehydrated, so they gave me an IV dose along with fluids. My blood work did not show inflammation or other markers for a Crohn's fl...

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Prednisone Side Effects?
Hi y’all!

I’m sure someone, somewhere has discussed this already, but I have already seemingly looked forever.

Quick background - I was diagnosed with small bowel crohn’s in November. Since then I have been on steroids twice, this is my 2nd time. I currently weigh about 99 pounds (which is heavy for me) & I’m 5’6” (just adding this in case it adds any neces...

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enlarged liver/spleen pyloric ulcer
Long history of Crohns:
Ct Scan shows no inflammation, but enlarged liver/spleen and possible pyloric ulcer. Blood work all normal. Only meds I take is a bile suppressor. Ileum/Cecum removed 7 years ago and have had no issues till now.
Just curious how liver/spleen pyloric are now showing issues, but blood work is all good and no inflammation showing on scans??? Have n...

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