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What NF teaches Europe about turning innovation into patient access – from the Biotech Act to joint clinical assessment and beyond.
Europe is rewriting the rules of medical innovation. Over the past year, the European Union has reached agreement on a major revision of its pharmaceutical legislation, advanced the Critical Medicin...
CTF CEO Annette Bakker, PhD and MIT professor Andrew Lo join host Ben Comer, chief editor of Life Science Leader on “The Business of Biotech” to lay out a bold new model for rescuing shelved drug candidates, and turning isolated success stories into a repeatable system.
CTF has already shown what is possible. Mirdametinib was shelved by Pfizer. CTF ...
As the school year approaches, many families feel a familiar mix of excitement, nerves, and last-minute to-dos. If your child lives with NF, you may also be juggling medical appointments, accommodation plans, or questions about how to support your child’s learning and confidence at school.
Whether your child is starting kindergarten or navigating a ...
For many people living with neurofibromatosis type 1 (NF1), pain is a daily reality. It can affect sleep, work, school, mobility, and quality of life. Yet despite its impact, pain remains one of the least understood aspects of NF1.
A new study published in
The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help them get established as independent NF investigators and pursue bold, innovative projects designed to improve care and uncover new treatments for people living with NF. Since its inception, several YIAs have made groundbreaking research findings a...