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Children's Tumor Foundation

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The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help them get established as independent NF investigators and pursue bold, innovative projects designed to improve care and uncover new treatments for people living with NF. Since its inception, several YIAs have made groundbreaking research findings a...


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The Children’s Tumor Foundation (CTF) has launched a global initiative to develop evidence-informed, consensus-based recommendations for the diagnosis of neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN, including NF2-related schwannomatosis, or NF2-SWN), and for the management of their associated manifestations. The approach to care for individuals with N...


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When Kristy Rath joined the Children’s Tumor Foundation NF Endurance team in 2009, she was looking for a way to take action after her daughter Jane was diagnosed with neurofibromatosis type 1 as an infan...


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Need help analyzing NF -omics or other big data?
Apply for the Open Computational Collaboration for NF Multi-Omics Research Initiative

The Children’s Tumor Foundation is launching the Open Computational Collaboration for NF Multi-Omics Research (OCC) with the goal of better understanding how gene regulation shapes the different prese...


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What Hunter’s story shows us about how new treatments for NF2-SWN are moving forward.

Hunter has lived with NF2-related schwannomatosis for most of his life.

Like many people with NF2-SWN, his experience has ...


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