The March NF Knowledge Series: Discovering Possibilities for Neurofibromatosis Type 1 (NF1) Plexiform Neurofibromas in Adults webinar was hosted by Mina Lobbous, MD, MSPH. The webinar allowed participants to hear from a leading neuro-oncologist about a potential treatment option and available support resources for adults navigating NF1-related plexiform ne...

We’re excited to officially kick off the 2026 NF Walk season!

Starting April 6, registration opens nationwide—bringing a refreshed look to the same powerful mission: to drive treatments for NF as we work toward a cure.

CTF Europe is proud to endorse and actively participate in the 2026 European NF Conference taking place in Vienna on November 12–14, co-hosted by NF Kinder and the Medical University of Vienna.

After joining us in Denver this June for the global NF Conference, keep the momentum going later this year in Vienna. The CTF NF Conference in Colorado bring...

The Children’s Tumor Foundation (CTF) is excited to announce the creation of a new CTF Engage Leadership Team, a dedicated group of community representatives helping to guide and strengthen the CTF Engage Patient Representative Program.

Individuals and families living with neurofibromatosis and schwannomatosis (NF) in the Chicago region now have expanded access to specialized care through the University of Illinois Chicago (UIC) NF Clinic, which has joined the Children’s Tumor Foundation’s NF Clinic Network (NFCN).

The UIC NF Clinic is the only program in Chicago that provides coordinated care for bot...