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Young Investigator: Q&A with Alberto Mendoza Valderrey, PhD, on Using Tumor Organoids to Study NF1

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help them establish themselves as independent NF investigators and pursue bold, innovative projects to improve care and uncover new treatments for people living with NF. Since its inception, several YIAs have made groundbreaking research findings and n...


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Bringing NF Into View—Nationwide

This May, the Children’s Tumor Foundation is once again bringing NF into the public eye—at scale.

For the sixth consecutive year,


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Communities Taking Action
How advocates like Sarah Powlison and communities nationwide are driving progress for NF

For Sarah Powlison, advocacy is deeply personal. It is also something much larger than herself....


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NF Awareness Month Kicks Off Worldwide, Spotlighting Progress in Research and Uniting a Global Movement to Act
FOR IMMEDIATE RELEASE
Global campaign highlights urgency of NF, celebrates advances in treatment development, and calls for communities everywhere to take action


NEW YORK, NY — May marks NF Awareness Month, a worldwide effort led by the Children’s Tumor Foundation (CTF) to shine a light on a group of genetic conditions that caus...


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Brigatinib Now in the NCCN Guidelines for NF2-SWN

BREAKING NEWS – FOR IMMEDIATE RELEASE

A landmark moment for NF2-SWN patients — Brigatinib is now part of national treatment guidelines — giving doctors, patients, and insurers a major new recognized treatment option for NF2-related schwannomatosis.

CTF brought the right people together, at the right time, in th...


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