Adel Zadeh is a 34-year-old Iranian biomedical engineer in Ardabil, in northwestern Iran, living with what some U.S. dermatologists call “the most painful disease you’ve never heard of.”
He has epidermolysis bullosa (EB), a rare genetic disorder that makes the skin so fragile it blisters at the slightest touch. Daily life involves constant pain, hours-long wound care a...