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Source: BBC
Gillian, 62, of Roydon, Essex, was diagnosed with progressive supranuclear palsy (PSP) in January 2024, leaving her unable to communicate and she rarely opens her eyes.
PSP affects about 5,000 people in the UK and causes problems with balance, movement, speech and vision. John, also 62, says...In our local caregiver support group, caregivers whose family members have a type of dementia (such as Lewy body dementia) report that their family members follow them around and may become anxious if the caregiver is not at their side. Shadowing likely derives from fear or anxiety, but the cause could be boredom. You, as the caregiver, might ask yourself, “what c...
We’ve helped over 1,500 families donate a loved one’s brain, so we have read many neuropathology reports. About half the time, people diagnosed clinically with multiple system atrophy (MSA) end up with a brain donation report that says the person had “Lewy body disease...
National Institute of Neurological Disorders and Stroke (NINDS) is requesting input from the atypical parkinsonism and Parkinson’s disease communities as part of a Request for Information (RFI). The RFI focuses on Parkinson’s disease (PD) and related neurodegenerative parkinsonisms, including progressive supranuclear palsy, corticobasal degeneration, multiple system atr...