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Website title: The National Fragile X Foundation | NFXF

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The National Fragile X Foundation is proud to expand the 2026 Randi J. Hagerman Summer Scholar Research Awards, this year providing four student researchers with grants of up to $5,000 each to support innovative Fragile X research p...


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The NFXF Connecticut and Western Massachusetts Chapters, and Sibling & Self-Advocate Network hosted a Mom’s Night Out last week. Nine mothers attended, and the conversation, as always, centered around our individuals with Fragile X and their successes and skills they need to work on. Thank you to Denise Devine for organizing, and to all who attended and offered support fo...


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Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July, Fragile X Awareness Month, but feel free to start early or hold your walk or gathering anytime! You can register as an individual, start a team, or join an existing team!

WHO: Anyone Anywhere!


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In our ongoing effort to advance scientific understanding and advancing treatment research in all Fragile X-associated conditions and disorders, we are sharing information on an available funding opportunity.

The Fiscal Year 2026 (FY26) Research Funding Opportunities from the Congressionally Directed Medical Research Programs (CDMRP), Peer Reviewed Medical ...


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Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation, this webinar will feature Shionogi discussing the recently shared trial results, what is known so far, and what comes next.

The webinar will be recorded and made available shortly after the event.

Attendees are enc...


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