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Following the recent election, more than 120 new members of Congress are expected to take office when the 120th Congress convenes in January 2027. Each new Congress brings an opportunity to introduce policymakers to Fragile X-associated conditions and the issues that affect individuals and families across our community.
Many incoming members may be unfamiliar with ...
This webinar brings together Fragile X researchers who are dedicated to research focused on females living with Fragile X syndrome. Hear from these incredible presenters as they share their research, emerging findings, and ongoing work in this important and understudied area. Learn why research focused specifically on females with FXS matters, what we’re discovering, and what...
Authors: Walter Kaufmann, MD; Paul Horn, PhD; and the FORWARD Consortium
Read “Profile of Behavioral Comorbidities in Children With Fragile X Syndrome” published in the Journal of Autism and Developmental Disorders[
Anavex Life Sciences has announced that the U.S. Food and Drug Administration (FDA) has cleared its Investigational New Drug (IND) application for its product, blarcamesine (ANAVEX®2-73), allowing the company to move forward with plans to study the in...
Who represents you matters. Elected officials at the federal, state, and local levels make decisions that can affect health care, disability services, education, community supports, and research funding for people living with Fragile X and their families.
Learning about candidates and understanding their priorities are ways to use your voice. As the 2026 election se...