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While looking into credentials in clinical ethics, I came across one I had never seen before: the “Certified Health Care Ethics Consultant,” with the initials HCEC-C. For a moment, I thought I was looking at a typo. The credential I know well, the ...
The All of Us research biobank recently announced a massive new data release – making it the largest health database in the world that allows researchers to access both donated genomic information as well as participants’ electronic medical records (EMRs). That combination can allow researchers to associate the genomic variations that we all have with health outcomes (e.g...
When the doctor’s note from my daughter’s wellness visit to the hospital was posted on our patient portal, I discovered that the doctor’s AI notetaker had erroneously entered ‘alcohol’ as the ointment applied to a dry skin patch on my daughter’s face, when in fact, my response to the doctor’s question of what I applied to my daughter’s face was ‘
Kristen Biel had breast cancer and her Catholic school refused to renew her contract.
Bioethicists have become very good at arguing for transparency. We encourage institutions to disclose conflicts of interest, explain difficult decisions, communicate uncertainty, and justify ethical trade-offs. These are all necessary, even essential — yet they are not enough.
Transparency helps explain decisions. It does not, by itself, create the relationships...